Patient Stories

Darlene Seyfried began suffering from a painful leg ulcer in 2002, when she was just 38. Despite years of treatment with her local physician, her ulcer failed to heal, and in fact she developed three new ulcers after one treatment attempt.
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Back in 2000, Elizabeth Macchio, an occupational therapist in her thirties, noticed herself feeling increasingly tired. Her local doctor found elevated levels of enzymatic activity in her liver, but even so, her condition eluded diagnosis for several more years. Finally, in 2004, a diagnosis was made: she had a rare autoimmune liver disease called primary sclerosing cholangitis (PSC). The functioning of her bile ducts was gradually worsening — without a new liver, she would eventually die.
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Alyson had suffered with digestive issues for much of her life, and in July of 2009 had to undergo a Whipple Procedure to remove a cancerous cyst on her pancreas. In her own words, Alyson explains how she has dealt with this incredibly difficult situation and maintained a positive attitude throughout.
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Bill Gillmore and his wife, Janice, in early 2010. Bill has a clean bill of health after his surgery at the pancreatic cancer to remove an"inoperable" pancreatic tumor.
Hear this incredible story of survival from Bill Gillmore, who was diagnosed with pancreatic cancer in 2009, and his wife Janice, who was by his side through the entire ordeal.
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"With HCM, it isn't easy finding the balance between what you can do, and what might set you back," says Pam Fleischaker. "You have to keep on going and use the energy you have, but you've always got to be careful not to overdo it." With this philosophy, Pam has succeeded in balancing a demanding career and raising a family, and her son Joey, who also carries the HCM gene, has blazed a trail in the world of sports.
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By age 23, Fanny Powers was on dialysis, and dangerously underweight, having dropped to 92 pounds. She underwent a Kidney transplant at NewYork-Presbyterian/ Columbia, and went on to have two healthy babies.
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Kidney swaps enable incompatible donors to give to strangers, in return for a matched kidney that can help their own loved ones or family members. The chain of giving can start with a single altruistic donor. Thirty-nine-year-old Long Island firefighter John McGuinness recently became the lynchpin in a rare three-way kidney swap, performed at NewYork-Presbyterian/ Columbia.
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