Our Services
If you’re living with connective tissue disorder, you know that finding the care you need can be tough, and coordinating between specialists can be ever tougher. We created the Columbia Marfan Clinic to help bring you top-level experts with an initmate understanding of your medical needs, all in one convenient location.
We take care of people 18 or older with any of the following conditions:
- Marfan syndrome
- Vascular Ehlers-Danlos syndrome
- Loeys-Dietz syndrome
- Beals syndrome
- MASS phenotype
- Familial Aortic Aneurysm
- Shprintzen-Goldberg syndrome
- Stickler syndrome
- Homocystinuria
- Ectopic Lentis syndrome
Care starts with our primary team, which includes a dedicated cardiologist who will serve as your main point of contact and coordinate with our other specialists to provide as many services as possible in a single visit, and all appointments and testing will be scheduled to minimize your time and travel burden.
Our team has been chosen by the chiefs and chairs of Columbia University Medical Center for our experience caring for those with connective tissue disorders. We, in turn, have a deep respect for your experience, and our single goal is to provide you with care that does not compromise on quality, convenience or respect.
To learn more or make an appointment with us, call 212-326-8949, or visit our primary location at 51 West 51st street, Suite 330.
Learn about our Pediatric Comprehensive Marfan Program.
Resources for non-vascular Ehlers-Danlos Syndrome
While we aim to help everyone with connective tissue disorder, our team does not specialize in care for non-vascular EDS. For patients with non-vascular EDS, please consider the following resources we have collected based on recommendations from our patients.
- From the Columbia/NewYork-Presbyterian/Cornell health system:
- Christina Ulane (Columbia) neurologist that sees patients for autonomic dysfunction / POTS
Arnold Advincula (Columbia) OB/GYN, endometriosis - Tiffany Lin (Cornell) pain management specialist, works with EDS patients.
- Christina Ulane (Columbia) neurologist that sees patients for autonomic dysfunction / POTS
- Unaffiliated physicians and programs recommended by patients:
- NYIT Hypermobile EDS clinic
- Center for Human Genetics
- Park Sports PT (they work with hypermobility)
- David Tegay (physician that founded the NYIT clinic, now at Northwell)
- Arnold Pallay (primary care physician affiliated with the Atlantic Health/Morristown Medical Center hospital systems in New Jersey. Is a part of a group that sees patients for EDS and other connective tissue disorders)
- Jena Blackwood (physical therapist, works with hypermobility and EDS patients)
- Eric Goldstein (gastroenterologist for IBS and IBD)